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For information on herpesviruses tailored to the needs of patients and laypersons. The following web sites may be of interest.
RESOURCE DISCLAIMER:
Any views expressed through listed Herpes Resources are those of the respective organizations themselves and are not necessarily endorsed by the AHF.
The AHF regrets that we cannot give medical advice or referrals, nor are we able to offer a medical question-and-answer service.
For the layperson, bear in mind that it is not possible to diagnose diseases (or to diagnose them yourself) over the Internet. If you suspect you might have a herpes infection or you have any related health or prevention concerns, the best thing to do is seek medical attention and/or advice from your physician right away. If you receive a diagnosis, he or she will tell you what steps (if any) you should take.
The list below is by no means comprehensive. Further resources for patients may be found on the Herpes Resources page.
The American Social Health Association
ASHA’s main web site with a comprehensive, categorized list of links to various sites on sexually transmitted disease. The site has a glossary of sexual health terminology as well as information on the various ASHA programs and hotlines.
Anonymous Testing Services - tSTD.org
tSTD is a new anonymous testing service that offers Focus Technologies' HerpeSelect® 1 and 2 ELISA IgG tests to detect herpes simplex virus types 1 and 2. tSTD also offers confidential testing for HIV, hepatitis B, hepatitis C, gonorrhea, syphilis, and chlamydia.
ASHA Herpes Resource Center
ASHA’s patient advocacy site with questions and answers for patients infected with herpesvirus, on-line educational materials, referral information for local support groups, and telephone numbers for counseling services.
Australian Herpes Management Forum
Site is intended for all interested people, from infectious diseases specialists to members of the public with no health training background. Content is searchable by condition or virus, includes treatment information, and includes a number of clinical images. Site is supported by GlaxoSmithKline Australia.
Genital herpes fact sheet
Prepared by the National Institute of Allergy and Infectious Diseases.
Genital herpes fact sheet
Prepared by the Centers for Disease Control and Prevention.
Varicella (chickenpox) information
Prepared by the Centers for Disease Control and Prevention.
Go Ask Alice
Prepared by the Columbia University's Health Education Service. This site allows readers to ask questions about sexual health, general health, and relationship topics. Readers may easily browse past questions and answers, which are archived by topic.
healthcheckusa.com
Another anonymous testing service, HealthcheckUSA, also offers HerpeSelect® testing. Test pricing and lab availability vary, so comparison shopping is suggested. IMPORTANT: Interpreting test results should always be done by a qualified clinician, who can also offer counseling and treatment strategies.
Herpes.com
Interesting, although somewhat technical listing of facts about herpes (in some detail), including testing, theories for its cause, symptoms, occurrence during pregnancy, prevention, transmission, and its relationship to AIDS, among others. There is a section on treatments with links to informative sites. Nutrition is featured, with a table on lysine/arginine ratios of some foods. There is also a listing of local health groups.
Herpesdiagnosis.com
Helps healthcare providers diagnose the disease, and patients to understand it.
Herpes Resource Center (Canadian)
Established in 2003, the Vancouver-based Herpes Resource Center reviews the myths and misconceptions surrounding herpes infections and offers tips on how to practice safer sex. A key offering: their 90-minute "teleclasses", which serve as a forum for people with herpes who wish to obtain information and support in a confidential, anonymous manner. Telephone: 604-herpes-4
HerpesWeb
GlaxoSmithKline-sponsored site with facts about genital herpes, living with the disease, treatment options, a glossary of terms, and links to additional information. There is a section specifically for healthcare professionals offering information on management of patients with herpes, links to reviewed sites, a listing of congresses and meetings, as well as herpes information appropriate for clinician-level discussion.
The Herpes Zone
Web links, glossary of terms, and practical information for patients on managing, coping, and living with herpes.
HerpeSite
America Online’s herpes support site. Interesting, specific information for patients. Patient-friendly discussion of symptoms, therapy, triggers, transmission, and hints for living with herpes. Links to on-line support and various other resources.
H.O.P.E
Novartis-sponsored online community for genital herpes sufferers. Membership is free and includes access to a monthly newsletter, articles by health professionals, and patient stories. Sections include how to tell your partner and family about your infection, information on recurrences, herpes and HIV, and herpes and pregnancy.
The International Herpes Alliance
This site provides extensive patient-focused information, including regional support group listings, issues and events, shared experiences of people living with herpes, and patient educational information available in multiple languages.
The International Union against Sexually Transmitted Infections (IUSTI)
The oldest international organization in the field. Its objective is the achievement of international cooperation in the control of sexually transmitted diseases, including HIV infection. Material primarily is of interest to members. The site does include a selection of herpes images.
iwannaknow.org
Designed to answer questions about teen sexual health and prevention of sexually transmitted diseases. The site also covers general sexual and relationship issues and features a moderated chat room where visitors may ask questions anonymously and share their concerns with others. Site is supported by ASHA and the Merck Company Foundation.
From the National Institute of Dental and Craniofacial Research Infection and Immunity, this wide-ranging and detailed article examines herpes infections and man's attempts to cope with them, from the days of Hippocrates to modern times.
New Zealand Herpes Foundation
Patient section includes herpes and pregnancy, recognizing genital herpes, and information for partners. Physician section contains downloadable treatment monographs and images of herpes outbreaks. Site is supported by GlaxoSmithKline New Zealand.
A support site created by and for people with herpes. The HHP has an interesting and varied list of links, but its premiere feature is its lively discussion forum. The content has not undergone medical review (the site is not affiliated with any medical organizations or pharmaceutical companies), so the visitor will want to check with his or her physician before acting on any advice found within.
Yoshi2me.com
A very informative site run by a HELP group facilitator, who was diagnosed with genital herpes in 1995. The site offers information and facts about genital herpes, cold sores (also known as oral herpes), herpes support groups, herpes social groups, herpes dating sites, herpes stories, as well as information on HPV and other sexually transmitted diseases. Yoshi2me.com has also compiled a comprehensive list http://www.yoshi2me.com/herpes-hpv-ssna.html of support groups from across the world.
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American Herpes Foundation - Hackensack, New Jersey
Telephone (201) 342-4441 | Fax (201) 342-7555